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Reply with quote  #31 
Originally Posted by carolkuk
Thank you Michelle.

I actually joined the Alz. Assoc. two times in Springfield. IL.  I visited my State Senator and State Rep.  I wore the purple sash.  With Illinois in the budget crisis it is in, funding for our families individual needs is nil.  However, I was part of the group who 'lobbied' (Alz. Assoc. Advocates), to ask that Silver Alert be a part of our State.  Silver Alert functions like Amber Alert.  Basically, if an Alz. patient wanders from home a Silver Alert is activated across the state.  I was part of our group lobbying effort and I am proud of the result.  It is a far cry from helping the working poor in Illinois, who care for family members with Alzheimer's, and frankly, other diseases. We lobby, we care for relatives and friends with Alzheimer's and other diseases, because we see the need, we see no one else is there to help 24/7/365, so person by person, family by family, we downsize our lives to take care of our loved ones.  At our own risk.  And, the risk for many of us is hunger and eventual homelessness.  Check with the Alz. Assoc.  Many of us who care for loved ones with Alz., wind up homeless.  Many of us are already hungry.  I am speaking of something that exists, yet no one can see. We don't qualify for most programs.  We are that percentage of the working poor that no one seems to understand.  We work, we make just enough as a household to not qualify.  My parents are not hungry.  I would never let that happen.  I am hungry.  I have been for a while.  That doesn't mean I don't eat anything in a day.  But, I do eat the minimum.  And, I go to bed hungry.  I will attend the Alz. Assoc., lobby efforts in the Spring in Springfield, IL. I will continue to help lobby for the current Alz. Policy.  Just know hunger is a reality within our Alz. caregiving community.  And, after meeting people who are caregivers for other long-term illnesses, there are more hungry, working adult caregivers than I could have ever imagined meeting.  So, I thank you all for your advice, your tips, links.  I'm trying to impress upon you the greater issues of hunger among the working poor.  And, the dignity.  We are educated, we have been working in various fields for decades, and brought down by an illness in circa..2017...This is a different time.  A different year.  And in 2017, we are still in the shadows.  Maybe in the future, I will be able to post adult hunger on any site, and people will know exactly what it means.  And, in my wildest dreams, I would never have to talk about hunger ever again.

I'm so sorry, Carol. I had (thought I had) replied to this, but I guess I messed it up. Anyway, I really have no words, but I am sorry for all you've been through, and I hope things get better for you. This is heartbreaking.
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